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Julia Jenkins

President of the Board of Directors at EveryLife Foundation for Rare Diseases

  • LinkedIn

Focused on building the rare disease community and ensuring rare disease patients globally have a voice in public policy and drug development. Julia collaborates directly with individual ...

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EVERYLIFE FOUNDATION FOR RARE DISEASES

EVERYLIFE FOUNDATION FOR RARE DISEASES

  • description Description
    We are dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lif...

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  • Employees count Employees 1-10
  • Revenue Revenue 1 Million to 5 Million
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EveryLife Foundation for Rare Diseases Org Chart and Mapping

Employees

Collin Sovie

Alliance Development Manager

Alyssa Terwall

Senior Director of Operations and Events

Bryeanna Spain

Representative and Advocate

Baillie McGowan

Associate Director of Policy and Research

Shannon Von Felden

Senior Director of Advocacy

Courtney Felle

Young Adult Rare Representatives (Yarr) Program Manager

Sue Colton

Director of Development

Julia Jenkins

President of the Board of Directors

Frequently Asked Questions Regarding Julia Jenkins

Answer: Julia Jenkins works for EveryLife Foundation for Rare Diseases as President of the Board of Directors

Answer: Julia Jenkins’s role in EveryLife Foundation for Rare Diseases is President of the Board of Directors

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Answer: Julia Jenkins works in the industry of: Public Policy

Answer: Julia Jenkins is the current President of the Board of Directors at EveryLife Foundation for Rare Diseases.... Read More

Answer: Julia Jenkins works EveryLife Foundation for Rare Diseases located at 1012 14th St Nw Ste 500, , District of Columbia, Washington, 20005, United States

Answer: EveryLife Foundation for Rare Diseases's President of the Board of Directors is Julia Jenkins

Answer: Julia Jenkins contact details:

  • Phone number  :  (***)-***-****
  • Email  :  j****@everylifefoundation.org

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