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Shannon Von Felden

Senior Director of Advocacy at EveryLife Foundation for Rare Diseases

  • LinkedIn

Over ten years of health care policy and advocacy experience on Capitol Hill and with national non-profit organizations with proven expertise in analyzing and interpreting policy; communi...

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EVERYLIFE FOUNDATION FOR RARE DISEASES

EVERYLIFE FOUNDATION FOR RARE DISEASES

  • description Description
    We are dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lif...

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  • Employees count Employees 1-10
  • Revenue Revenue 1 Million to 5 Million
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EveryLife Foundation for Rare Diseases Org Chart and Mapping

Employees

Brenda Murzi

Associate Director of Communications

Courtney Felle

Young Adult Rare Representatives (Yarr) Program Manager

Stephanie Siddiqi

Associate Director of Development

Jamie Sullivan

Senior Director of Public Policy

Baillie McGowan

Associate Director of Policy and Research

Julia Jenkins

President of the Board of Directors

Alyssa Terwall

Senior Director of Operations and Events

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Answer: EveryLife Foundation for Rare Diseases's Senior Director of Advocacy is Shannon Von Felden

Answer: Shannon Von Felden contact details:

  • Phone number  :  (***)-***-****
  • Email  :  s****@everylifefoundation.org

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