Myotonic Dystrophy Foundation

Myotonic Dystrophy Foundation

Non Profit Organization Management, 663 13th St, Oakland, California, 94612, United States, 1-10 Employees

myotonic.org

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Who is MYOTONIC DYSTROPHY FOUNDATION

We envision a world with treatments and a cure for myotonic dystrophy (DM). Our mission is Community, Care, and a Cure. We created the Myotonic Dystrophy Foundation (MDF) to enhance the q...

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industries-icon Industry: Non Profit Organization Management

SIC SIC Code: 8399 | NAICS Code: 813410 | Show More

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Myotonic Dystrophy Foundation Org Chart and Mapping

Employees

Mindy Kim

Support Group Facilitator

Emily Romney

Special Project Manager

Kleed Cumming

Director of Communications & Technology

Allison Formal

Senior Science Consultant

Ruth Sheldon

Health Resource Coordinator

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Frequently Asked Questions Regarding Myotonic Dystrophy Foundation

Answer: Myotonic Dystrophy Foundation's headquarters are located at 663 13th St, Oakland, California, 94612, United States

Answer: Myotonic Dystrophy Foundation's phone number is +16*********

Answer: Myotonic Dystrophy Foundation's official website is https://myotonic.org

Answer: Myotonic Dystrophy Foundation's revenue is $10 Million to $25 Million

Answer: Myotonic Dystrophy Foundation's SIC: 8399

Answer: Myotonic Dystrophy Foundation's NAICS: 813410

Answer: Myotonic Dystrophy Foundation has 1-10 employees

Answer: Myotonic Dystrophy Foundation is in Non Profit Organization Management

Answer: Myotonic Dystrophy Foundation contact info: Phone number: +16********* Website: https://myotonic.org

Answer: We envision a world with treatments and a cure for myotonic dystrophy (DM). Our mission is Community, Care, and a Cure. We created the Myotonic Dystrophy Foundation (MDF) to enhance the quality of life of people living with myotonic dystrophy (DM) and to drive research focused on treatments and a cure. DM is an inherited disorder that can appear at any age and manifests differently in every person. MDF is the leading global advocate helping patients and families navigate the DM disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, MDF is often the only resources and support they are able to locate. Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the MDF community. Based in Oakland, California, MDF partners with, and complements the work of, the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), and other governmental, academic, and philanthropic agencies.

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