Phone Number: +14*********
Who is ALD CONNECT
We are an international, independent, non-profit group of ALD patients, patient advocates, and researchers, who collaboratively educate, advocate, and conduct clinical research among the ...
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Headquarters: Boston, Massachusetts, 01949, United States
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Date Founded: 2013
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Employees: 1-10
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Revenue: Under $1 Million
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Active Tech Stack: See technologies
Industry: Research
SIC Code: 6719
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Frequently Asked Questions Regarding ALD Connect
Answer: ALD Connect's headquarters are located at Boston, Massachusetts, 01949, United States
Answer: ALD Connect's phone number is +14*********
Answer: ALD Connect's official website is https://aldconnect.org
Answer: ALD Connect's revenue is Under $1 Million
Answer: ALD Connect's SIC: 6719
Answer: ALD Connect has 1-10 employees
Answer: ALD Connect is in Research
Answer: ALD Connect contact info: Phone number: +14********* Website: https://aldconnect.org
Answer: We are an international, independent, non-profit group of ALD patients, patient advocates, and researchers, who collaboratively educate, advocate, and conduct clinical research among the men, women, and children affected by X-linked adrenoleukodystrophy (ALD). Our Mission is to improve the lives of individuals with ALD by facilitating communication, raising awareness, improving education, and advancing scientific understanding of the disease. Our Vision is to revolutionize care for ALD by facilitating communication between patient communities and clinical trial networks thus enabling rapid identification, optimization, and implementation of therapeutic strategies and, ultimately, a cure. Our values commit us to the empowerment and protection of patients and to the cooperative planning, implementation, analysis and reporting of controlled clinical trials, observational studies, and educational activities within the ALD community. We are dedicated to the principles of open scientific communication, peer review, full and open disclosure of potential conflicts of interest, and democratic governance of the organization and its activities.
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